About Us

EDS Resource Network

EDS Resource Network is Utah's first and only 501(c)3 non-profit serving the EDS community. It was founded in the spring of 2017 by those affected by the Ehlers Danlos Syndromes. Run solely by volunteers, we are working to connect people to reliable resources, raise awareness regarding connective tissue disorders, and most importantly, providing financial assistance to those seeking a genetic diagnosis. We are based near Salt Lake City, Utah. We are very excited to bring these resources to the public and look forward to helping others find their answers.

Cheryl Harrison - President

Cheryl has a Bachelor of Psychology from Westminster College, and a Master of Business Administration from Brigham Young University. Having served on the PTA for a number of years, she is currently serving with the state PTA Health Commission. She has volunteered in several different capacities in relation to the disability community. Cheryl was diagnosed with hypermobile Ehlers Danlos Syndrome (hEDS) in 2015, after a long diagnostic search. While looking for her answers, she heard about EDS through her autism support group. Cheryl founded EDS Warriors of Utah Facebook group while looking for answers to her own medical concerns and discovered there wasn’t a regional support group. She has several family members who have also been diagnosed with EDS. Cheryl and her husband are life-long residents of Utah.

Christelle Sampson - Secretary

Christelle is a Geology student at Salt Lake Community College, and has lived in Utah her whole life. She has volunteered at some local museums, and is currently working at one. She lives on a small farm where she lives with her dog, cat, and several chickens. She and several of her family members are diagnosed with hEDS.

Calandra Crowley - Treasurer

Calandra is a life-long resident of Utah. She has done volunteer work at the Leonardo, a local museum. She loves animals and computer animation. She was diagnosed with hEDS at the age of 17, after a life-long series of unexplained symptoms finally added up.